The Story of Joy, Part 3

One part of my spiritual and personal story that I haven’t discussed much is the pregnancy, birth, and early life stages of our daughter, Joy. My wife recently wrote about this and I thought I would share it on the blog with a series of posts. God has moved in profound ways concerning Joy and her life has taught me many things:

Enter my wife, Leah.

After Joy’s amazing cleft lip repair, we continued to walk daily in faith that she would improve and heal. It was a whirlwind of doctor visits from her Craniofacial surgeon, to GI specialist, a nephrologist, a urologist, a geneticist, a pulmonologist, an opthalmologist, ENT specialist, cardiologist, and later an orthopedic specialist. I had to carry around a little notebook to keep everything up to date for the appointments.

In the mean time, we still needed her cleft palate repaired and would wait until she was around 9 months old to get that done. During that time, she had pneumonia and so many ear infections due to the cleft. I even surprised one of her doctors when I told him baby food was coming out of her ear when she ate!! That sounds crazy, but all of that was connected and open before her first surgery. So many things were causing issues that seemed overwhelming at the time.

joy3

Along with doctor visits, we had awesome ECI therapists (PT, OT, Speech/feeding) come into our home to help with Joy’s progress. They made a huge difference and listened to my concerns. Her PT was an integral part of helping us discover Joy’s scoliosis at such a young age. This was another God moment!

Joy has had 4 cleft palate repairs. Several had to happen because she did not heal properly after surgery. So many times we were sent to the geneticist because her doctors just knew she had a syndrome that would explain all of the things going wrong. Nothing was pinpointed, but we still had to move forward with her care.

Her first cleft surgery was extremely hard. It makes me sick thinking about it. The recovery room for Joy has always been the hardest. She does not respond well to anesthesia and has an extremely hard time waking up and calming down. After each surgery comes weeks of liquid diets, restrictions, and sometimes slow healing.

People prayed each time for her surgeries and God provided His strength and peace during those tough times. I cannot imagine walking this journey without my brothers and sisters in Christ. The body of Christ has held us and walked with us every step of the way. We are continually grateful for this blessing.

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